Jackson, a beautiful seven month old baby, was diagnosed with Spinal Muscular Atrophy (SMA), a genetic neuromuscular disease characterized by muscle atrophy and weakness. SMA is the leading genetic cause of death in infants and toddlers. There is no known cure.
Jackson could not move his arms or legs or hold his head up independently and his ability to swallow was deteriorating. What should be a time of great joy for his parents, is instead filled with intense worry and anxiety.
Jackson’s family held on to hope as he was selected to participate in an out of state clinical trial.
The Paul Jackson Fund stepped in to help defray some of the costs associated with Jackson’s medical care and travel accommodations.
“Our family believes in miracles and we are hopeful for a divine intervention.” ~ Jackson’s loving grandfather